Hey everyone! My name’s Chloe, I’m 28 and live in a small town in South Shropshire. I was diagnosed with RRMS in July 2021. MS has been part of my life since 2014, however, when my dad was diagnosed with PPMS.
I can normally be found with my miniature dachshund, Sidney, who is more like my baby. I got him in the middle of my diagnosis so he’s been by my side throughout it all. He has absolutely no idea how adored he is, even more so because of this.
I originally joined MS Together as despite knowing other people with MS, none of them were my age. Finding others who understand has helped me no end. Since joining, I’ve also become a Regional Group Leader for the West Midlands as I’d love to be able to help others in the way that I’ve been helped.
Before being diagnosed, I thought I had life pretty much figured out. Then along came the curveball of an MS diagnosis and my belief was blown out of the water. I’ve since found out a few things about life and myself that I didn’t know before.
Here’s a few things I’ve learnt:
Be Selfish
Putting yourself first is one of the most important things you can do. You and your health should be your priority. If you’re not at an optimum level, how can you support anyone else?
Learn How To Say No
This ties in with being selfish. Saying no can be necessary for both your physical and mental health. If you’ve got an overloaded calendar, you’re going to be run down. Prioritise what’s most important and plan rest days.
You’re Going To Lose And Gain Friends
Maybe you lost friends because they weren’t there for you when you needed them. Unfortunately that’s life. However, just by being part of MS Together, you’ll have gained so many supportive friends who completely understand what you’re going through.
You’re Your Best Advocate
Sometimes you really have to speak up to get what you want and need. Feel like your medical team aren’t providing you with what you require? Tell them. Been waiting a long time for results or an appointment? Chase it. Picking up the phone often gets the best results.
Your Thoughts And Emotions Are Valid
Being told you have MS is huge. You’re allowed to grieve. You’re allowed to not understand. You’re allowed to ask why you. This might happen straight away or it may take time for these thoughts and emotions to reach the surface. Everyone is different and how everyone handles things is different. No matter how or when you react, it’s valid.
You’re Stronger Than You Think
You’ve got through a life changing diagnosis and you’re still here. That in itself shows the strength you have, even if you don’t feel it sometimes.
These are just some of the things I’ve learnt, but I’m sure there’s plenty more. The main thing to take home is that you’re never alone and that we’re all constantly learning.
Chloe Roberts
