About Us

Here at MS Together, we want to make sure that no one has to face MS alone.

Here at MS Together we want to make sure that you don’t have to face MS alone.

We are a charity based in the UK and ROI. Our charitable purpose is to provide support services and advice for people affected by multiple sclerosis (MS), with a particular focus on people aged 18 – 35 living with MS.

Our purpose

There are over 130,000 people in the UK living with MS, with 100+ people diagnosed each week. MS is most commonly diagnosed in people in their 20s and 30s and is the most common central nervous system condition in young adults. 

We exist to raise awareness of MS and provide advice and support to people affected by MS. Our main focus is to provide much needed support for young people living with MS.

We understand that a diagnosis of MS is difficult at any age, but a diagnosis during your teens, 20s or early 30s brings specific challenges depending on where you find yourself. You could be finishing your exams, going to university, starting or changing your career, dating, starting a family, moving house, going travelling, and so much more. Everyone experiences MS differently but we know that around these big milestone events, it’s essential that people can access the support they need.

We enable connections to be made via our private online groups and we also organise a number of virtual and in-person events. And we offer one-to-one support sessions delivered by trained mental health first aiders, for anyone who needs extra support.

Ultimately, we want to empower people to share their stories, advocate for themselves and live their best lives, despite their MS. We’re determined to be there for you every step of the way – through the good and the bad times, because together we are stronger.

How we started

A note from the founder:

“Hi, I’m Amy and I’m the founder of MS Together. It all started in 2018 when I was diagnosed with MS just after my 21st birthday. One of the first things I did was scroll endlessly on social media and charity websites trying to find people like me – people I could relate to. I wanted to hear about other people’s experiences and know that there were other young people out there going through the same thing.

Sadly, I couldn’t find anyone I could really relate to and I felt like there was nobody my age openly talking about MS. I felt completely under-represented. I began talking about my experience online and people started reaching out to me. And that’s where MS Together started. In the beginning, we were just six members but over the last few years we’ve grown to over 1000! We provide a safe space for young people to connect and make friendships. We’ve organised hundreds of virtual calls and events and hosted a number of in-person meet-ups. We’ve also raised over £70,000 for other MS charities through our own initiatives. And, in 2021 we won the Community Organisation Award for Disability at the National Diversity Awards.

What makes MS Together special is that every member makes this group the safe and supportive place that it is. I also have a brilliant team of volunteers behind me and am so proud of the work they do; I couldn’t do it without them. I have so many plans for the future and there’s a lot of hard work ahead but I’m determined to help and support as many people living with MS as possible.”